Treatment of connective tissue dysplasia in St. Petersburg

Connective tissue dysplasia (CTD) is a disorder of the formation of connective tissue at the moment of conception, when the genetic material of the future fetus is formed. This is a different type of combination of amino acids that affects the connective tissue of the body. Connective tissue in the body is present in all systems: cardiovascular, musculoskeletal, respiratory, urinary, visual and auditory analyzer systems, nervous system, etc. DST occurs due to a genetic disorder in which mutations occur during the formation of collagen, a building protein body. If it mutates significantly, it leads to severe organ damage and problems in their functioning.

Connective tissue dysplasia can be differentiated or undifferentiated.

The first includes:

Ehlers-Danlos syndrome - very mobile joints, thin skin prone to damage, scar formation instead of proper wound healing, thin and fragile blood vessels;
Marfan syndrome - occurs in patients with tall stature, long limbs and fingers, and is characterized by insufficient formation of fatty tissue, vision problems and cardiovascular disorders, as well as joint hypermobility;
Stickler syndrome: facial asymmetry, vision and eye problems, decreased hearing and joint pathology;
osteogenesis imperfecta syndrome: brittle, curved bones, ligament weakness, muscle atrophy and other manifestations.

Undifferentiated CTD (UCTD) is a combination of various clinical manifestations of abnormalities that go beyond the above genetically determined syndromes, which we will consider below.

DST syndromes

Each patient with dysplasia is a carrier of a unique defect, which makes it difficult for doctors to create a general classification of pathologies. One thing is known: disorders in connective tissue during DST appear, as a rule, in several organs and systems of the patient’s body at once and can take the following forms:

myopia, astigmatism, myopia;
scoliosis, flat feet, osteoporosis, early osteochondrosis, diaphragm deformation;
disturbances in the functioning of the gastrointestinal tract, kidneys;
arrhythmia, changes in blood pressure, disorders of the heart valve apparatus and vascular function;
hypermobility of joints, for example, hands, feet, shoulders, shoulder blades;
diseases of the bronchi and lungs;
asthenia: decreased performance, increased fatigue;
Immune system disorders: immunodeficiency, allergies;
neurological disorders: panic attacks, vegetative-vascular dystonia;
asymmetrical facial features, incorrect placement and growth of teeth, curvature of the neck, etc.;
thinness, transparency and extensibility of the skin;
mental disorders: depression, eating disorders, hypochondria, etc.

Connective tissue dysplasia

last name, first name, patronymic of the subject of personal data;
Date of Birth;
place of residence (region/city);
Mobile phone number;
email address (e-mail);
history of requests and views on the Site and its services (for Site visitors);
other information (the given list may be shortened or expanded depending on the specific case and purposes of processing).

3.3.
The operator ensures that the content and volume of the processed personal data corresponds to the stated purposes of processing and, if necessary, takes measures to eliminate their redundancy in relation to the stated purposes of processing.

3.4.

The operator processes biometric personal data subject to the written consent of the relevant subjects of personal data, as well as in other cases provided for by the legislation of the Russian Federation.

3.5.

The Operator does not process special categories of personal data relating to race, nationality, political views, religious or philosophical beliefs.

3.6.

The Operator does not carry out cross-border transfer of personal data.

Purposes of collecting personal data

4.1. Personal data is processed by the Operator for the following purposes:

ensuring the organization of medical care to the population, as well as the most complete fulfillment of obligations and competencies in accordance with Federal Laws of November 21, 2011 No. 323-FZ “On the fundamentals of protecting the health of citizens of the Russian Federation”, dated April 12, 2010 No. 61-FZ “On circulation of medicines”, Rules for the provision of paid medical services by medical organizations, approved by Decree of the Government of the Russian Federation of October 4, 2012 No. 1006;
implementation of labor relations;
implementation of civil law relations.
organization and implementation of a set of measures aimed at maintaining and (or) restoring health and including the provision of medical services, including prevention, diagnosis and treatment of diseases;
implementation of remote interaction of LLC “Clinic of Immunology and Allergology No. 1” with patients and other interested parties within the framework of service and information services through the use of telephone communications, instant messaging services, IP telephony, email
implementation of remote interaction of LLC “Clinic of Immunology and Allergology No. 1” with patients and other interested parties through the website of LLC “Clinic of Immunology and Allergology No. 1” on the Internet;
organizing and conducting events aimed at increasing awareness and loyalty towards LLC “Clinic of Immunology and Allergology No. 1”, as well as promotion;
conducting contractual work not related to the main activities of LLC “Clinic of Immunology and Allergology No. 1”,
within the framework of the emergence, change and termination of legal relations between LLC “Clinic of Immunology and Allergology No. 1” and third parties, as well as the execution of powers of attorney to represent the interests of the Operator;
participation of LLC “Clinic of Immunology and Allergology No. 1” in civil, arbitration, criminal, administrative processes and execution of judicial acts;
filling vacant positions in LLC “Clinic of Immunology and Allergology No. 1” with applicants who most fully meet the Operator’s requirements;
compliance by LLC "Clinic of Immunology and Allergology No. 1" with the requirements of labor legislation, legislation on labor accounting and remuneration
preserving the life and health of employees of LLC "Clinic of Immunology and Allergology No. 1" during their work activities and identifying health problems and medical contraindications to work among employees of LLC "Clinic of Immunology and Allergology No. 1" (including examination for medical contraindications to driving a vehicle ), as well as compliance with the requirements of current legislation for the investigation and recording of accidents that occurred with employees of LLC “Clinic of Immunology and Allergology No. 1”;
implementation of LLC "Clinic of Immunology and Allergology No. 1" as an employer of the responsibilities provided for by the Labor Code of the Russian Federation to pay employees due wages, compensation and bonuses, to make pension and tax contributions, as well as settlements with contractors and patients;
organizing training, advanced training and knowledge testing for employees of Clinic of Immunology and Allergology No. 1 LLC, assessing the business and personal qualities of employees of Clinic of Immunology and Allergology No. 1 LLC and the results of their work, as well as assessing the satisfaction of employees of Clinic LLC immunology and allergology No. 1” with their work;
registration of travel documents for employees of Clinic of Immunology and Allergology No. 1 LLC, as well as booking and purchasing hotel rooms and transport tickets in the interests of employees of Clinic of Immunology and Allergology No. 1 LLC sent on business trips;
facilitating communications between employees of LLC “Clinic of Immunology and Allergology No. 1” by maintaining a directory of contact information for employees of LLC “Clinic of Immunology and Allergology No. 1”;
ensuring the personal safety of employees of Clinic of Immunology and Allergology No. 1 LLC, other persons visiting real estate (premises, buildings, territory) of Clinic of Immunology and Allergology No. 1 LLC, as well as ensuring the safety of material and other assets managed by the LLC “Clinic of Immunology and Allergology No. 1”;
allocation/connection of computing resources, creation of new users in the information systems of LLC "Clinic of Immunology and Allergology No. 1", providing access to the resources of information systems of LLC "Clinic of Immunology and Allergology No. 1", as well as solving problems that arise for users in the process of working with computers (hardware and software) and office equipment;
recording information on the use of corporate landline and mobile communication services by employees of LLC “Clinic of Immunology and Allergology No. 1”;
conducting an independent audit of the accounting (financial) statements of LLC “Clinic of Immunology and Allergology No. 1” in order to express an opinion on the reliability of such statements;
organization and implementation of internal quality control of medical care and internal production processes at LLC “Clinic of Immunology and Allergology No. 1”;
conclusion of any contracts with subjects of personal data and their further execution;
Conducting promotions, surveys, interviews, testing and research on the Sites by the Operator;
providing personal data subjects with the Operator’s services, as well as information about new services, including advertising ones;
feedback from subjects of personal data, including processing of their requests and appeals, informing about the operation of the Site;
monitoring and improving the quality of the Operator’s services, including those offered on the Site;
maintaining personnel work and organizing records of the Operator’s employees, regulating labor and other relations directly related to them;
generation of statistical reporting;
carrying out economic activities;
implementation of other functions, powers and duties assigned to the Operator by the legislation of the Russian Federation.

Legal grounds for processing personal data

5.1. The legal grounds for the processing of personal data by the Operator are:

Constitution of the Russian Federation;
Labor Code of the Russian Federation dated December 30, 2001 No. 197-FZ;
Code of the Russian Federation on Administrative Offenses dated December 30, 2001 No. 195-FZ;
Federal Law of November 21, 2011 No. 323-FZ “On the protection of the health of citizens in the Russian Federation”;
Federal Law of July 27, 2006 No. 149-FZ “On information, information technologies and information protection”;
Federal Law of July 27, 2006 No. 152-FZ “On Personal Data”;
Requirements for the protection of personal data during their processing in personal data information systems (approved by Decree of the Government of the Russian Federation of November 1, 2012 No. 1119);
Regulations on the specifics of processing personal data carried out without the use of automation tools (approved by Decree of the Government of the Russian Federation of September 15, 2008 No. 687);
Administrative Regulations of the Federal Service for Supervision in the Sphere of Communications, Information Technologies and Mass Communications for the implementation of the state function “Maintaining a register of operators processing personal data” (approved by Order of the Ministry of Communications and Mass Media of the Russian Federation dated December 21, 2011 No. 346);
Administrative regulations for the execution by the Federal Service for Supervision in the Sphere of Communications, Information Technologies and Mass Communications of the state function of exercising state control (supervision) over the compliance of the processing of personal data with the requirements of the legislation of the Russian Federation in the field of personal data (approved by Order of the Ministry of Communications and Mass Media of the Russian Federation dated 11/14/2011 No. 312);
The composition and content of organizational and technical measures to ensure the security of personal data during their processing in personal data information systems (approved by Order of the Federal Service for Technical and Export Control of the Russian Federation dated February 18, 2013 No. 21);
The composition and content of organizational and technical measures to ensure the security of personal data during their processing in personal data information systems using cryptographic information protection tools necessary to fulfill the requirements established by the Government of the Russian Federation for the protection of personal data for each level of security (approved by the Order of the Federal Service Security of the Russian Federation dated July 10, 2014 No. 378).
statutory documents of the Operator;
agreements concluded between the Operator and subjects of personal data;
consent of personal data subjects to the processing of personal data;
other grounds when consent to the processing of personal data is not required by law.

Procedure and conditions for processing personal data

6.1. The processing of personal data by the Operator is carried out in the following ways:

non-automated processing of personal data;
automated processing of personal data with or without transmission of received information via information and telecommunication networks;
mixed processing of personal data.

6.2.
List of actions performed by the Operator with personal data: collection, systematization, accumulation, storage, clarification (updating, changing), use, distribution (including transfer), depersonalization, blocking, destruction, as well as carrying out any other actions in accordance with the current legislation of the Russian Federation.

6.3.

The processing of personal data is carried out by the Operator subject to obtaining the consent of the subject of personal data (hereinafter referred to as Consent), with the exception of cases established by the legislation of the Russian Federation when the processing of personal data can be carried out without such Consent.

6.4.

The subject of personal data decides to provide his personal data and gives Consent freely, of his own free will and in his own interest.

6.5.

Consent is given in any form that allows you to confirm the fact of its receipt. In cases provided for by the legislation of the Russian Federation, Consent is issued in writing.

6.6.

The condition for terminating the processing of personal data may be the achievement of the purposes of processing personal data, the expiration of the Consent or withdrawal of Consent by the subject of personal data, as well as the identification of unlawful processing of personal data.

6.7.

Consent may be revoked by written notice sent to the Operator by registered mail.

6.8.

When processing personal data, the operator takes or ensures the adoption of the necessary legal, organizational and technical measures to protect personal data from unauthorized or accidental access to it, destruction, modification, blocking, copying, provision, distribution of personal data, as well as from other unlawful actions in relation to personal data.

6.9.

The storage of personal data is carried out in a form that makes it possible to identify the subject of personal data for a period no longer than required by the purposes of processing personal data, except in cases where the period for storing personal data is established by federal law, an agreement to which a party, beneficiary or guarantor, under which is the subject of personal data.

6.10. When storing personal data, the Operator uses databases located on the territory of the Russian Federation.

Updating, correction, deletion and destruction of personal data, responses to requests from personal data subjects for access to personal data

7.1.

If the fact of inaccuracy of personal data or the illegality of their processing is confirmed, the personal data must be updated by the Operator, or their processing must be stopped accordingly.

7.2.

The fact of inaccuracy of personal data or illegality of their processing can be established either by the subject of personal data or by the competent government bodies of the Russian Federation.

7.3.

At the written request of the subject of personal data or his representative, the Operator is obliged to provide information about the processing of personal data of the specified subject by him. The request must contain the number of the main document identifying the subject of personal data and his representative, information about the date of issue of the specified document and the issuing authority, information confirming the participation of the subject of personal data in relations with the Operator (contract number, date of conclusion of the contract, conventional verbal designation and (or) other information), or information otherwise confirming the fact of processing of personal data by the Operator, signature of the subject of personal data or his representative. The request can be sent in the form of an electronic document and signed with an electronic signature in accordance with the legislation of the Russian Federation.

7.4.

If the request of the personal data subject does not reflect all the necessary information or the subject does not have access rights to the requested information, then a reasoned refusal is sent to him.

7.5.

In the manner provided for in clause 7.3, the subject of personal data has the right to demand that the Operator clarify his personal data, block it or destroy it if the personal data is incomplete, outdated, inaccurate, illegally obtained or is not necessary for the stated purpose of processing, as well as take measures provided by law to protect your rights.

7.6.

When the goals of processing personal data are achieved, as well as in the event that the subject of personal data withdraws Consent, personal data is subject to destruction if:

The operator has no right to carry out processing without the Consent of the subject of personal data;
otherwise is not provided for by the agreement to which the subject of personal data is a party, beneficiary or guarantor;
otherwise is not provided for in another agreement between the Operator and the subject of personal data.

Collection of personal data using the site

8.1.

The website of Clinic of Immunology and Allergology No. 1 LLC uses “cookies” and collects the following information about visitors in order to improve the site: IP address of the visitor, date and time of visiting the site, types of browser and operating system, type and model of mobile device.

8.2.

When using electronic services and providing personal data through the website of Clinic of Immunology and Allergology No. 1 LLC, the user’s information will not be used by Clinic of Immunology and Allergology No. 1 LLC for any other purposes other than to meet his specific needs.

8.3.

By using this site and/or providing LLC “Clinic of Immunology and Allergology No. 1” with his personal data, the site user agrees to the processing of his personal data under the conditions provided for in this Policy.

8.4.

In case of disagreement with this Policy, the user should not use this site and provide LLC “Clinic of Immunology and Allergology No. 1” with his personal data.

Final provisions

9.1.

All relations relating to the processing of personal data that are not reflected in this Policy are regulated in accordance with the provisions of the legislation of the Russian Federation.

9.2.

The operator has the right to make changes to this Policy. When changes are made to the current edition, the date of the last update is indicated. The new edition of the Policy comes into force from the moment it is posted on the Site, unless otherwise provided by the new edition of the Policy.

9.3.

This Policy is subject to publication on the official website https:// https://smartclinic59.ru//. The current version of the Policy on paper is stored at the address: 614000, Perm region, Perm, st. Pushkina, 6.